Patient experiences of families with children to improve hospital activities

Patient experiences of children and families at three university hospitals, as well as using patient feedback in developing hospital activities have been examined in a large research collaboration

The three-year Lapsus research project has examined the experiences that child patients and their families have had of hospital visits, treatment, and services, as well as everyday experiences of coping with illness in the children’s clinics of the university hospitals of Helsinki, Oulu, and Turku. The results have helped in the planning of activities and facilities of the New Children’s Hospital in Helsinki.

‘The new methods and the experiences from the study help us understand what kinds of things are important for children and families in a hospital. The study has been an excellent opportunity for making the voices of children and families heard and to learn how information on their experiences can be collected and utilised in the development of the activities of a children’s hospital and in the planning of new hospitals,’ says Pekka Lahdenne, Head of Functional Planning of the New Children’s Hospital.

‘The patient experiences of children, young people, and their parents have been studied rather scarcely. Patient experience is a multidimensional concept and it can be measured from many different angles: the professional skills and friendliness of staff, smoothness of diagnosis and decision making, the quality of instructions given, confidence in the success of treatment, and strain imposed on everyday life caused by the disease,’ says Aalto University postdoctoral researcher Johanna Kaipio, director of the Lapsus research project.

The Lapsus research project is funded by Business Finland and is closely linked with the functional development of the New Children’s Hospital. Participating members in the research were Aalto University and the Tampere University of Technology as well as the children’s wards of the university hospitals in Helsinki, Turku, and Oulu.

Read the whole article on Aalto University website.

Lapsus website (in Finnish)